Feeling better...

because this is what I did today...
+made coffee
+took baby Charlie to baby story time
+took Syl to the library
+addressed all of Syl's birthday invitations
+mailed out Syl's birthday invitations
+picked Antman up from football
+had lunch at Jenn's
+went to the grocery store
+unloaded dishwasher
+made dinner
+washed some dishes
+picked Antmanup from Jenn's
+gave twins a bath
+picked up 8 bags of mulch and 10 bags of topsoil at Home Depot
+mulched flower beds
+made a new flower bed
+changed filter on furnace
+showered
+empty all trash cans in the house
+took out trash
+went to Walgreens to get allergy medication for Syl
+plucked eyebrows
+updated blog

All in a days work ;)

MIGRAINE....

This was the first weekend in a long time that I had nothing to do when the kids were at their dad's... So I thought I would do ABSOLUTELY NOTHING :)
Which was great...until the migraine set in Saturday evening... (I tried to finally go completely off prednisone... my body has a very hard time doing that since I am on it so much.)
This migraine was BAD... sensitivity to light, throwing up, can't move, etc...

My goal is to get off prednisone completely during the summer... I will reach the goal...just not this week...because I have to go back on for the headaches/migraines.

Definitely unique...

Today I went to the PRIDE parade for the 2nd year in a row.... This is an excellent display of humans expressing themselves! Everyone was so unique...no two the same... kind of like teaching... I have never taught 2 kids that were even similar. They are all so different in many ways. It is one of the reasons why I am so passionate about my job... knowing every child is different...and letting them know it is okay to be different...

Today was wonderful... hanging with friends... and seeing that there was so much support for uniqueness today... I even saw a poster that said "I Love My Gay Son!"

Own little worlds...

I talk about how I am in my own little "Keena World"...but so are my own children...well, not in my world...but in their own little worlds...

The "teenager's world":

No concept of time...

Struggles to problem solve a simple task such as go in while I'm fueling the mom van and buy 2 bags of Trolli candy...

Loses everything under the sun...

While on his itouch, he sings and plays games out loud...while his headphones are on...

Tries to boss his sister constantly...

Wants to be upper management in the house...

Every time he is asked to do something, the responses are "I'm tired" or some type of argument...

Wants to explain all strategies of his video games...

My "princess's world"

No concept of time...

Wants to please, but wants to do her own thing...

Drama, drama, drama...

When asked to do something, has resulted in modeling her brother's responses...

Does not want to clean anything up...

Has to dump everything out to view everything (and not clean it up)...

Irritates her brother, then screams/cries/whines when he gets her back...

More drama, drama, drama...

So when I'm suppose to keep my stress levels down...having 3 different worlds under one roof makes that VERY challenging for me...

Not just a back cracker...

When I went to the chiropractor today... I tried to go in with an open mind. (not with my preconceived notions of Chiropractor=Back Cracker)

Boy, I hit the jackpot!

He has a holistic approach...

not just cracking...but a natural well being...with exercise, diet, and health. I even have to take a wellness class. He listened to everything I said...then told me that I was the one who had to listen to my body...and to tell him what my body was saying. Plus, he gave me his cell number in case I was in severe pain this weekend. He even had me set goals of what I want with my overall health!

I don't think I have ever experienced someone like this...

[As you can see from my pictures... my new chiropractor is the opposite of the pictures ;) ]

The BEST part is that my pain is getting better!!

Pain....

"Pain is a pain in the butt." -Antman

Pain is consuming.... (it consumes my thoughts, my energy, my world)

Pain is overwhelming.... (it causes me to lose it)

Pain can control.... (it feels like it is controlling my summer vacation)

Pain needs to leave my body!!!! (headed to the chiropractor tomorrow)

Maybe...

Maybe I should have stayed home and cleaned my house....

Maybe I should not have danced so much Friday night with Angie...

Maybe I should not have eaten 2 fudge cycles last night...

Maybe I should not be on my 2nd latte this morning...

Maybe this, maybe that...

Maybe I should just live life how I want to...each day...each hour...each minute...each moment...

No regrets :)

Clean up crew...

While Princess Sylvie was busy as a bee helping everyone clean up at Kae Avenue... The teenager was hard at work ;)

Answers...

So I called my amazing doctor to see if I could get an earlier appointment...and of course she worked me in...

I walked in with all my test results from the ER...and I left with some answers...

My SI joint (aka my left hip joint) is inflamed....then I showed her that it pops when i bend and straighten it... She prescribed some meds to calm my hip down...then off to physical therapy.

Today I am feeling very lucky to have an AWESOME doctor who figures things out!

(BTW...the joint between #1 and #2 on the left side)

ER

And another trip to the ER with some type of unknown pain... After many tests (all coming back normal), they think it is muscle related... so off to my amazing doctor next to figure out what exactly is going on and develop a plan...

With all of this crazy chaos, I am blessed with amazing family and friends!!!! When I had to spend about 9 hours at the ER, Lindsey picked me up and hung out with me. My dad drove over to hang out with the kiddos... The ex relieved my dad... Sister J relieved Lindsey... Sister L kept calling and texting to check on me... Friends sent texts of support and encouragement!

When you have Lupus, you need a team to help you survive and cope... Your team keeps you positive... Remember, you are never alone...but you do have to reach out for support! :)

Almost done...

I haven't been posting because it is the end the year...my school year. This is what teachers refer to as being "burnt out"...so imagine being a burnt out teacher with lupus and being a single mom... yep,you've got it! That extreme fatigue is set in... I did get a second wind... I'm switching grades next year. After 10 years of 3rd grade, I finally get to move up to 5th. I'm so full of many feelings....excited, sad, scared, happy.... time for a new adventure :)